One of the things my doctors discussed with me before I started chemotherapy was how likely it was my cancer would recur. With my particular type, uterine papillary serous carcinoma, I was told the recurrence percentage was between 40 and 50 percent if I didn't have chemo or radiation. If I chose treatment, it would be for curative purposes, dropping the possible recurrence rate to under 5 percent. The other thing they told me was that if I didn't have treatment and I did have a recurrence, I would be looking at palliative options versus curative.
Palliative, in general terms, refers to care that alleviates symptoms, whether or not there is hope of cure. It's a focus on quality of life. Making patients comfortable. Curative means able to heal or cure. Big difference.
I've been thinking about the types of things I believe patients should ask at their first oncology appointments, and why. The why is easy: no one cares about your health or treatment more than you and your loved ones. Your healthcare providers are, in a roundabout way, your employees. They're doing a job. Here are the questions I'd ask:
- What is my specific type of cancer?
- What is the stage (a description of the extent the cancer has spread)?
- What is the grade (a measure of how aggressive the cancer is)?
- What treatment are you proposing?
- Is the treatment curative, or simply palliative?
- If chemo is proposed, what specific drug regimen?
I was lucky to hear my doctors were proposing chemo as a curative option. I don't take it for granted. It's one of the reasons I founded Chemo Cargo. Really, the main reason. If you haven't heard of it, you can learn more at Chemo Cargo.